Never be bullied into silence. Never allow yourself to be made a victim. Accept no one’s definition of your life; define yourself.
—Harvey Fierstein (via zeldawilliams)
This year I am participating in the Virginia/DC/Maryland 2014 Walk To End Lupus Now that helps to provide donations to the Lupus Foundation of America. As most of my close friends and family know, I have an auto-immune disease called Systemic Lupus Erythematosus. It’s a disease that is gaining more and more recognition by the medical community, but it is a disease that is still widely misunderstood.
Lupus does not receive the same amount of funding as other more prevalent diseases. The Lupus Foundation of America is an organization that works to change that every single day. They fight for those of us who are too sick to fight. They help to provide care and treatment for those who have limited resources while living with this disease.
While treatment for this disease has improved over the years, many forms of it are still crude at best. We don’t receive the funding or attention as other diseases, so we end up being out on drugs that were never created to treat lupus in the first place. Most of us end up on chemotherapy drugs and anti-organ rejection medications that we have to take every day just to have a fighting chance at life.
Your donation, no matter how small, can help change the future of not only my life, but the lives of so many others out there.
Just a few years ago, there was a drug going through clinical trials and that almost didn’t make it through. It was a drug that I so desperately wanted to be on, a drug that I forced myself to keep fighting for just so I could have a better chance at life. It felt like an impossible dream, a treatment that I would never have access to.
Now it’s a drug that I am so blessed to get every four weeks, it is the drug that is saving my life according to my doctors. It is the dream drug that I hoped and prayed about for so many years. Donations helped to pay for the research that made the drug evolve from a hopeful trial to a life saving infusion that I now receive.
I am so grateful for each and donation that I receive that goes towards The Lupus Foundation of America. Every time I get an email saying that I’ve received a donation, my heart swells with joy and my eyes are filled with tears of hope. Your donations give me the hope to keep fighting and keep living.
Thank you for helping me to stay strong, even when it feels impossible, because at the end of the day, your donations make my life possible.
Please visit my link to my personal webpage for the 2014 Walk To End Lupus Now!